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Waking up deaf, nearly blind doesn't slow Rebecca Alexander's morning routine

Sept 2016 today.com

Rebecca Alexander, a 37-year-old psychotherapist from New York City, was born with Usher Syndrome type III, a rare genetic mutation that has slowly robbed her of both sight and hearing. She was diagnosed at age 13, but hasn’t let the condition slow her down. A fierce competitor, she climbed Mount Kilimanjaro and swam the icy San Francisco Bay from Alcatraz last year. Her 2014 book, “Not Fade Away: A Memoir of Senses Lost and Found,” has been optioned for a movie.
 
Rebecca

What time do you get up?
I usually set my alarm and get up around 7. But I have a mini golden doodle dog named Olive who licks my face and snuggles with me, so in fact, it’s more like 7:40. I call her “Monkey.”

Do you have any rituals that help you navigate your day?
I am deaf when I get up — I don’t have my hearing aid or cochlear implant. It’s the last thing I do, and I prefer it that way. There’s always a siren or a bus or construction noise in the city. But my apartment is pretty close to the subway, and when I lie in bed I can feel it rumble beneath me.

Are you a morning person?
I guess I am. I get up with Monkey and feed her. I put my contacts in, then throw on my gym clothes and sneakers and go for a morning walk. On a good day, I go to Central Park before 9 with Monkey for the “off-leash” hours. I take a big red rubber ball — it’s big on purpose, so when I throw it, I can easily find it. She stays close, but sometimes I look around and can’t find her. Then I realize she’s right at my feet.

Rebecca

How do you adapt to the hearing and sight loss?
My left ear has a hearing aid and my right has a cochlear implant. I have donut vision, so I see inside and outside of the donut. I know where most things are by touch. My closets are all color coordinated to make it easier for me to find what I am looking for. I am a Lululemon ambassador, so my closet is a shrine to them.

What are the toughest tasks?
If anything, trying to find my shoes. But I really don’t worry as much about my condition. I am 37 and I was told I would be completely blind at 30. I have 10 degrees of vision and a normal person has 180. I am just happy to be able to see the morning. One thing about Usher’s syndrome, is it makes you incredibly humble and forces you to be very present. People think way too far ahead into the future, as opposed to where they are right now.

Can you cook your own breakfast?
I usually grab a protein bar and go to take or teach a fitness class. I go religiously at 9 a.m. I could cook, I am just lazy. After I work out, I make myself almond butter on toast and coffee. I live for coffee. I love it.

What’s your workout like?
I teach spin classes and usually do high-intensity training. One of the reasons I do the HIT classes is because it does not require running all over the place. You can do every exercise and all the aerobic and strength training by staying in one place. For someone who is vision impaired, you don’t run into anything. I also have a coach.

What kind of prep do you do for your psychotherapy work?
I have to do a lot of reading for my dialectical behavioral therapy course after my HIT class. I have an iPad that enlarges the text. I also have an app, BookShare, which was created by an ophthalmologist. You can have access to every book imaginable. It inverts colors when you read or you can scroll like a teleprompter.

How do you get to work on the busy city streets?
I go to work around 11. My apartment is close to my office and I use a cane when I need it, mostly at night. My day vision is quite strong.

It sounds like you embrace each day with purpose and joy.
One thing I know for sure about myself, is that I feel a lot better when I am productive. So I make sure every day, I wake up and know what my priorities are, or set a goal or two. 

 

 

 

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